TAKE-HOME MESSAGES OF THIS CHAPTER

  • It can sometimes be difficult to talk about your child’s DSD.

  • The more you talk about it, the easier it gets.

  • It helps to follow-up a conversation the next day, to ask the other person if he or she has any questions or concerns.

  • People sometimes react badly simply because they are fearful or ignorant. Educating others about DSDs may reduce their fear and ignorance, and so it may reduce their negative reactions.

  • As your child grows, you may let him or her decide what you or your child will tell teachers, friends, etc., about your child’s DSD.

  • Prepare yourself with questions, comments, and notes before you go to a medical appointment so that you can get the most out of it. It’s okay to ask the same question more than once. Ask your child’s medical care givers lots of questions and keep good notes and records.