You may not find a group that deals specifically with your child’s DSD. There isn’t a support or information group for every kind of DSD. If you’re in that position, contact a group that might make sense, and tell them that there isn’t a group for your child’s DSD so you’d like their help as much as possible. Later, if you find yourself feeling strong, think about starting a group for your child’s DSD.

Disclaimer: Although all of the following groups have useful information and contacts to share, this list should not be construed as a blanket endorsement of their work. Furthermore, the list is not exhaustive, and support group contact information changes frequently: websites may be more accurate than mailing addresses; consult for the latest information.

Intersex Society of North America (ISNA)
            979 Golf Course Drive #282 Rohnert Park, CA 94928

Androgen Insensitivity Syndrome Support Group (AISSG)
            PO Box 2148 Duncan, OK 73534-2148

Androgen Insensitivity Syndrome Support Group Canada (East)
             #206, 115 The Esplanade Toronto, Ontario M5E 1Y7 Canada
            email: sallie AT ican DOT net (English)
            email: orquideequebec AT yahoo DOT ca (French)

Androgen Insensitivity Syndrome Support Group Canada (West)
            #17, 3031 Williams Road Richmond, B.C. V7E 1H9 Canada
            email: lesnick AT shaw DOT ca

CARES Foundation Congenital Adrenal Hyperplasia Education & Support
            189 Main Street, 2nd floor Millburn, NJ 07041

Hypospadias & Epispadias Association (HEA)
            240 W. 44th St. Suite 1A New York, NY 10036

Klinefelter Syndrome and Associates
            11 Keats Court Coto de Caza, CA 92679

The Magic Foundation
            6645 W. North Avenue Oak Park, IL 60302

MRKH Organization
            P.O. Box 301494 Jamaica Plain, MA 02130

Turner Syndrome Society of the U.S.
            14450 TC Jester, Suite 260 Houston, TX 77014

XY Turner
            Box 5166 Laurel, MD 20726