The directory of resources provided below tells about a small part of the information now available about DSDs. It shows some of the most current and well-known resources available to help you as you begin the journey with your child.
Note that many of the resources here are provided here with web addresses, so that you can read them on the Internet. It will be much easier to access these articles if you use an electronic version of this book (either pdf or html, both available at http://www.dsdguidelines.org). In the electronic versions, all the links are clickable.
The Intersex Society of North America (ISNA, http://www.isna.org) hosts the most extensive website on DSDs and is an invaluable resource. (ISNA members led this book project.) It provides excellent information about specific DSDs, much educational and informational material, links to support groups and other websites devoted to DSD issues, and a bibliography that includes over 1000 items.
The American Association of Sex Educators, Counselors, and Therapists (AASECT, http://www.aasect.org) is an organization that certifies professionals in areas of sex counseling, education, and therapy. Some parents of children born with DSDs say that professional assistance from a sex therapist, for example, has helped at various times in their children’s development. This website hosts an online referral network that can help you locate a certified sex therapist in your geographic area.
The American Academy of Pediatrics website (http://www.aap.org) is an excellent source for finding out about parenting and child development. It also provides information about safety concerns (like car seats and water safety), recommends books about parenting, and has a search system called “find a pediatrician” which will help you find pediatric specialists (like pediatric endocrinologists and child psychiatrists). The American Academy policy about parents’ rights to informed consent and children’s participation in medical decision-making can be found at http://aappolicy.aappublications.org/cgi/content/abstract/pediatrics;95/2/314. The paper copy of this article appears in the journal Pediatrics, volume 95, issue 2, pp. 314-317 (Feb. 1, 1995).