Appendix A KEY TO PHOTOGRAPHS

 

ANA LIPPERT AND ANGELA MORENO LIPPERT

           

Ana Lippert tells about her experience in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. The first picture shows Ana and her husband, Dennis, and their daughters Angela and Michelle when the girls were young. Angela has partial androgen insensitivity syndrome (PAIS). The second picture is a recent photograph of Angela and Michelle. The third picture shows Angela and David Cameron, both members of the board of directors of the Intersex Society of North America, a patient advocacy group. Angela works in hospital administration and as a professional chef.

BEV MILL

The first picture shows Bev Mill at age four in Red Deer, Alberta, and the second shows Bev Mill at age 66 with her faithful friend, Kiewa. Bev tells some of her story in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs.

       

CHERYL CHASE AND ROBIN MATHIAS

           

In 1993, Cheryl Chase kicked off the peer support and patient rights movements for people with DSDs by founding the Intersex Society of North America. Cheryl was born with ovotestes and with genitals in-between the male and female types. The first picture shows Cheryl at seven months, when she was being raised as a boy, according to doctors’ advice. The second picture shows her as a little girl, following doctor-recommended gender reassignment when she was 18 months old. The third picture shows her with her spouse, Robin Mathias. Today, Cheryl works full time to improve the standard of medical care for people with DSDs. She and Robin keep horses, chickens, an Aussie sheep dog, and sometimes pigs on their hobby farm in Sonoma County, California.

COLLIN STOLL AND MOLLY STRATTAN

Collin Stoll is shown here with his wife, Molly, and two children hiking near Mt. Hood, Oregon. Collin is a teacher and acupuncturist with a masters degree in Asian Religion and Acupuncture and one in Oriental Medicine. He is an avid hiker, biker, skier and world traveler, now with kids! Collin has hypospadias and hypogonadism. He tells some of his story in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs.

CINDY STONE

       

You can read Cindy Stone’s memories and thoughts in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. Cindy is shown in the first picture at age eight in her Easter Sunday outfit, and in the second picture as an adult. Cindy has the complete form of Androgen Insensitivity Syndrome.

PETER TRINKL

Peter Trinkl is shown in the first picture enjoying a swimming lesson at the age of seven, and he is shown in the second picture at the age of 53. Peter was born with ambiguous genitals and raised as a boy.

       

ESTHER MORRIS LEIDOLF

               

Esther Morris Leidolf reflects on her experiences in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. The first picture shows her at age five in the first grade. The next two show her with her son, Jake, and the fourth shows her on her honeymoon at age 48. Esther founded http://www.MRKH.org, a group that provides information and education about MRKH and vaginal agenesis.

HERBERTA SMITH

           

Herberta Smith is a retired missionary who now lives (and dodges hurricanes) in Florida. She recounts her experiences and gives some advice in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. The first picture shows Herberta in 1995 when she was a medical missionary in Uganda, in East Africa. Nine years later she became a guardian for a Ugandan child with a DSD. The second picture shows her in 2002 speaking at a Senior Conference.

HOWARD DEVORE, PH.D., AND TIM SHANNAHAN

Howard Devore is a psychologist living in California. Howard is shown here first swimming, then with his parents while on vacation together. Howard had ambiguous genitalia at birth, and had 18 surgeries between the ages of three months and 44 years to alter his genital “difference.” The third picture shows Howard and his partner Tim Shannahan, who was also born with ambiguous genitalia. Tim had no surgeries.

IAIN MORLAND, PH.D.

               

Iain Morland is a university lecturer, musician, and audio designer for film and multimedia. The first picture shows Iain when he was a baby. The second shows Iain at age 25, at home in London in late 2003, halfway through his Ph.D. on medical ethics. In 2002 Iain earned an M.Phil. degree in psychoanalysis. For both degrees, he looked at what happens to people born with DSDs. (He has published widely on these topics.) Because his eight childhood surgeries for hypospadias were unsuccessful, Iain elected to have three further surgeries in his late teens. However, these also produced poor outcomes, and led to three extra unplanned surgeries. He then realized that a far better way to make DSDs less scary and shameful was to talk and write about them.

THEA HILLMAN

Thea Hillman provides her thoughts about her experiences in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. Thea has borderline congenital adrenal hyperplasia (CAH). She is shown here in three pictures with her mother, Freema Hillman. Thea, an award-winning poet, performer, and community organizer, is the author of the book Depending on the Light (Manic D Press, 2001).

LYNNELL STEPHANI LONG

Lynnell Stephani Long relays her retrospective wishes in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. Lynnell is a licensed Emergency Medical Technician and an intersex activist and educator residing in Chicago. The first picture shows Lynnell at six months old. Lynnell was born with partial androgen insensitivity syndrome (PAIS) and also the symptoms of hypogonadism, panhypopituitarism, and hypothyroidism. At birth, her mother was told she was a boy, and so she was named Steven Lenell. Doctors performed surgery to correct the baby’s hypospadias. The doctors also informed Lynnell’s mother that her "son" would need hormonal therapy at a later age in order for her "son" to successfully mature into a male. At age 14, Lynnell started to go through a feminizing puberty. Doctors tried treating her with large amounts of testosterone, without success. She stopped the testosterone injections and changed her name legally to Lynnell Stephani. The remaining pictures show Lynnell as an adult.

DAVID CAMERON

           

David Cameron expresses his retrospective wishes in Chapter 6 THOUGHTS FROM FELLOW PARENTS AND FROM ADULTS WITH DSDs. David has Klinefelter Syndrome; he found that out when he was an adult. The first picture shows him as a little boy during his happy childhood. The second picture shows David as a young man, around the time he became a schoolteacher in Alexandria, Egypt. The third picture shows David and Angela Moreno Lippert during a retreat of board members of the Intersex Society of North America. David now lives with his partner in San Francisco, where David is a community organizer and a philanthropist.

MAX AND TAMARA BECK

           

The first picture shows Max and Tamara Beck and their daughter welcoming their new baby to the family. The second shows the whole “Incredibles” Beck family on Halloween. Although Max is not able to have biological children, he and his wife, Tamara, were able to have a family with the help of a sperm donor. Max was born with a condition known as mixed gonadal dysgenesis. He was raised as a girl, but opted to transition into a male gender role and legally become a man in his early 30s. He and Tamara were a couple before the transition, and after the transition, they were able to legally marry. Max and Tamara are both legal parents of their two children.

JANE GOTO

Jane Goto is a woman with complete androgen insensitivity syndrome (CAIS). The first pictures show her as a child. The next shows her as a young girl with her mother, Betty, and the last shows Betty with grown-up Jane. Jane and her husband live in the Pacific Northwest.