This handbook is the result of an extraordinary collaboration among parents of children with disorders of sex development (DSDs), adults with DSDs, clinicians who care for people with DSDs, and other patient advocates. Christine Feick and Sallie Foley wrote the original draft of this document, including much of the material contained in Chapters One through Three. Alice Dreger then invited review and contributions from others and edited the handbook, adding additional material with help from collaborators. We are truly grateful for the assistance and support that has been provided to us in this work, and we hope that readers will use the associated website ( to give us feedback about it. We hope to refine and expand this document so that it becomes as supportive as such a book can be.

We are grateful for the participation of David Cameron, Peter Trinkl, and Esther Morris Leidolf in this project. However, they would like to make it known that they do not support the term “Disorders of Sex Development.”

We would like to thank Yvonne Day ( for design assistance, Chris Dreger ( for illustration assistance, and Bob Stayton ( for technology assistance with DocBook.

This document has been made possible by generous grants from The California Endowment ( and the Arcus Foundation ( provided to the Intersex Society of North America (

Web-browseable and downloadable versions (both with clickable links) of Clinical Guidelines for the Management of Disorders of Sex Development in Childhood and Handbook for Parents are available at no cost from