Index

Symbols

17-beta reductase deficiency, METHODOLOGY
3-beta-hydroxysteroid dehydrogenase deficiency, METHODOLOGY
5-alpha reductase deficiency, DEFINITION OF DSDs, METHODOLOGY

D

daycare environment, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
diabetes, MULTIDISCIPLINARY TEAM APPROACH, PSYCHOSOCIAL SUPPORT
dilation (see pressure dilation)
disagreement, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON
disclosure, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, SCRIPTS FOR TALKING WITH PARENTS
and surgery, TIMING OF SURGERIES
timing of, TELLING THE TRUTH
disorders of sex development
causes, METHODOLOGY (see )
defined, DEFINITION OF DSDs
discovered after newborn period, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
discovered in newborn, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
discovered in the newborn, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
discovered prenatally, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
enumerated, DEFINITION OF DSDs, METHODOLOGY (see )
in adults, METHODOLOGY, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, PSYCHOSOCIAL SUPPORT, TIMING OF SURGERIES, REDUCING STIGMA RELATED TO MEDICAL CARE
distress, METHODOLOGY, PSYCHOSOCIAL SUPPORT
child’s, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs
parents’, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TEAM COMPOSITION, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, TIMING OF SURGERIES, TELLING THE TRUTH, SCRIPTS FOR TALKING WITH PARENTS
DSDs (see disorders of sex development)
ducts
reproductive, DEFINITION OF DSDs, METHODOLOGY

F

family pediatrician, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
female sex development, METHODOLOGY
fertility, TIMING OF SURGERIES
long term prospects, TIMING OF SURGERIES

K

Kallman Syndrome, METHODOLOGY
Klinefelter Syndrome, DEFINITION OF DSDs, METHODOLOGY

M

male sex development, METHODOLOGY, GENDER ASSIGNMENT
Mayer, Rokitansky, Kuster, Hauser Syndrome, METHODOLOGY
medical interpretation, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
medical photography (see photography)
medical translation, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
mental health care, PURPOSE OF THIS DOCUMENT, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, METHODOLOGY, TEAM COMPOSITION, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, PSYCHOSOCIAL SUPPORT, TIMING OF SURGERIES, TIMING OF HORMONAL THERAPY, SCRIPTS FOR TALKING WITH PARENTS
(see also Psychology; Psychiatry)
mental health support, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, PSYCHOSOCIAL SUPPORT, TELLING THE TRUTH (see )
micropenis, METHODOLOGY
MIS (see Mullerian-inhibiting substance)
mosaic karyotype, DEFINITION OF DSDs, METHODOLOGY
MRKH (see Mayer, Rokitansky, Kuster, Hauser Syndrome)
Mullerian agenesis, METHODOLOGY
Mullerian ducts, METHODOLOGY
Mullerian-inhibiting substance, METHODOLOGY
multidisciplinary clinic, TEAM OBJECTIVES, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
multidisciplinary team approach, PURPOSE OF THIS DOCUMENT, MULTIDISCIPLINARY TEAM APPROACH, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, PSYCHOSOCIAL SUPPORT
Coordinator, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
Leader, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
learning, MULTIDISCIPLINARY TEAM APPROACH, TEAM OBJECTIVES
Liaison, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
management, MULTIDISCIPLINARY TEAM APPROACH, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, PSYCHOSOCIAL SUPPORT
objectives, TEAM OBJECTIVES, TIMING OF SURGERIES

P

pan-hypopituitarism, METHODOLOGY
parental history
and stigma, REDUCING STIGMA RELATED TO MEDICAL CARE
parents
education, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TIMING OF SURGERIES
patient
education, TIMING OF SURGERIES, TELLING THE TRUTH
patient-centered care, PURPOSE OF THIS DOCUMENT, METHODOLOGY, TREATMENT GUIDELINES, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TELLING THE TRUTH
patients
education, TIMING OF SURGERIES
Pediatric Endocrinology, TEAM COMPOSITION, TIMING OF HORMONAL THERAPY
Pediatric Urology, TEAM COMPOSITION
pediatrician (see family pediatrician)
peer support, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, MULTIDISCIPLINARY TEAM APPROACH, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, PSYCHOSOCIAL SUPPORT, TIMING OF SURGERIES, REDUCING STIGMA RELATED TO MEDICAL CARE (see )
at inital referral, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
contact information, SUPPORT GROUP INFORMATION
growing a local network, TEAM OBJECTIVES
Persistent Mullerian Duct Syndrome, METHODOLOGY
phallic size, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs
photography, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
and stigma, REDUCING STIGMA RELATED TO MEDICAL CARE
prenatal diagnosis, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
pressure dilation, METHODOLOGY
privacy, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
progestin-induced virilization, METHODOLOGY
pseudo-hermaphroditism, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs (see disorders of sex development)
Psychiatry, TEAM COMPOSITION, GENDER ASSIGNMENT, TIMING OF SURGERIES, TIMING OF HORMONAL THERAPY, SCRIPTS FOR TALKING WITH PARENTS
Psychology, TEAM COMPOSITION, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, GENDER ASSIGNMENT, TIMING OF SURGERIES, TIMING OF HORMONAL THERAPY, SCRIPTS FOR TALKING WITH PARENTS
psychosocial support, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, PSYCHOSOCIAL SUPPORT
puberty, METHODOLOGY, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
and hormonal therapy, TIMING OF HORMONAL THERAPY
delaying, METHODOLOGY, GENDER ASSIGNMENT
examination, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
uncertainty about gender identity, GENDER ASSIGNMENT

R

recording (see audio recording; photography)
referral
initial, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs (see )
referring institutions (see community health care professionals)
training, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
reproductive technologies, METHODOLOGY, TIMING OF SURGERIES

S

school environment, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD
scripts, SCRIPTS FOR TALKING WITH PARENTS
explaining DSDs to friends and family, SCRIPTS FOR TALKING WITH PARENTS
gender assignment, SCRIPTS FOR TALKING WITH PARENTS
secrecy, REDUCING STIGMA RELATED TO MEDICAL CARE, TELLING THE TRUTH, SCRIPTS FOR TALKING WITH PARENTS
sex assignment (see gender assignment)
sex chromosomes, DEFINITION OF DSDs, METHODOLOGY, GENDER ASSIGNMENT, TELLING THE TRUTH (see )
sex development, METHODOLOGY, GENDER ASSIGNMENT
animation, METHODOLOGY
female, METHODOLOGY
male, METHODOLOGY
sexual function, TIMING OF SURGERIES, THE IMPORTANCE OF SEXUAL WELL-BEING
sexual orientation, SCRIPTS FOR TALKING WITH PARENTS
sexual sensation, TIMING OF SURGERIES
sexual well-being, PURPOSE OF THIS DOCUMENT, THE IMPORTANCE OF SEXUAL WELL-BEING
shame, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, PSYCHOSOCIAL SUPPORT, TELLING THE TRUTH, SCRIPTS FOR TALKING WITH PARENTS
and sexual orientation, SCRIPTS FOR TALKING WITH PARENTS
Social Work, TEAM COMPOSITION, TEAM LEADER, TEAM COORDINATOR, AND TEAM LIAISON, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, PSYCHOSOCIAL SUPPORT, SCRIPTS FOR TALKING WITH PARENTS
SRY, METHODOLOGY, GENDER ASSIGNMENT
stigma, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, GENDER ASSIGNMENT, TELLING THE TRUTH, THE IMPORTANCE OF SEXUAL WELL-BEING
and medical care, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, TIMING OF SURGERIES, REDUCING STIGMA RELATED TO MEDICAL CARE
surgery, SCRIPTS FOR TALKING WITH PARENTS
and gender assignment, GENDER ASSIGNMENT, TIMING OF SURGERIES
and psychological trauma, TIMING OF SURGERIES
and sexual function, TIMING OF SURGERIES
and sexual well-being, THE IMPORTANCE OF SEXUAL WELL-BEING
and timing of disclosures, TIMING OF SURGERIES
clitoral, TIMING OF SURGERIES
elective, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TIMING OF SURGERIES
implicit message, TIMING OF SURGERIES
lack of evidence for early, TIMING OF SURGERIES
long term outcomes, TIMING OF SURGERIES
neonatal period, TIMING OF SURGERIES
parental decision making, TIMING OF SURGERIES
timing of, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, GENDER ASSIGNMENT, PSYCHOSOCIAL SUPPORT, TIMING OF SURGERIES, SCRIPTS FOR TALKING WITH PARENTS (see )
Swyer Syndrome, METHODOLOGY

T

TDF, METHODOLOGY
teaching settings, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF NEWBORNS WITH DSDs
team approach (see multidisciplinary team approach)
teasing (see bullying and teasing)
technologies
reproductive (see reproductive technologies)
terminology (see language)
testosterone, METHODOLOGY
trauma
and surgery, TIMING OF SURGERIES
true hermaphroditism, METHODOLOGY (see disorders of sex development)
truth-telling, DEFINITION OF PATIENT-CENTERED CARE FOR DSDs, TREATMENT PROTOCOLS FOR THE MANAGEMENT OF CHILDREN DIAGNOSED WITH DSDs AFTER THE NEWBORN PERIOD, REDUCING STIGMA RELATED TO MEDICAL CARE, TELLING THE TRUTH, SCRIPTS FOR TALKING WITH PARENTS
Turner Syndrome, DEFINITION OF DSDs, METHODOLOGY

V

vaginal agenesis, PURPOSE OF THIS DOCUMENT, DEFINITION OF DSDs, METHODOLOGY
(see also pressure dilation)
vaginoplasty, METHODOLOGY
virilization
exogenous, METHODOLOGY

W

Wolffian ducts, METHODOLOGY