This handbook is the result of an extraordinary collaboration among clinicians who care for people with disorders of sex development (DSDs), parents of children with DSDs, adults with DSDs, and other patient advocates. We are truly grateful for the assistance and support that has been provided to us in this work, and we hope that readers will use the associated website ( to give us feedback about it.

We are grateful for the participation of David Cameron, Peter Trinkl, and Esther Morris Leidolf in this project. However, they would like to make it known that they do not support the term “Disorders of Sex Development.”

We would like to thank Yvonne Day ( for design assistance and Bob Stayton ( for technology assistance with DocBook.

This document has been made possible by generous grants from The California Endowment ( and the Arcus Foundation ( provided to the Intersex Society of North America (

Web-browseable and downloadable versions (both with clickable links) of Clinical Guidelines for the Management of Disorders of Sex Development in Childhood and Handbook for Parents are available at no cost from